I wanted to share with all my advocate friends out there an experience that I had recently. I had waited many weeks to see doctor who specializes in sleep apnea, I had been having more and more difficulty with sleeping and being tired during the day. My appointment day was here so i was anxious to see the Doctor so I could get some help. I showed up for my appointment which was at 1: 30 I ended up waiting until 3:00 before the doctor came in. She came in with 2 other doctors which made me feel a bit uncomfortable but I had waited so long that I didn't say anything.
The doctor started looking over my records and I could tell she had not read my records. She then went on to say "Is your diagnosis Downs"? I felt offended and decided to say "Excuse me, but my family does not call me Downs they say Down syndrome". By then she realized she had said something offensive to me and apologized.
Thank you
Jesssica Green
DSI Self advocate/ spokesperson
Friday, August 8, 2008
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